PTASD*’ing a day in the Land of A*…

I’m not sure why there is very little discussion on PTASD outside the Land of A but I do know nobody is really talking about it. Perhaps it hasn’t been discovered yet. Or maybe it’s something that professionals would say has no basis in fact since there is no scientific data to substantiate it. I guess it’s a reasonable to assume that PTASD is just a figment of my imagination. But here in the Land of A, sometimes, maybe just a lot of times, PTASD feels very, very real.

If PTASD is real, I wonder if it is like an illness that one can recover from. Perhaps it is like an allergy that crops up seasonally or an illness such as a cold or flu that heals after a couple of days. Maybe it mirrors a chronic ailment with good and bad days but something that never quite goes away. Or maybe PTASD is simply my way of explaining the sometimes feeling of being bone weary tired from exposure to everyday events that are normal only in the Land of A.

My imagined or real PTASD started out simple enough. This morning barely awake, enough to do some plank exercises to work out the stiffness in my back, I was greeted by One-of-my-own’s bugle cry, “CAN WE HAVE A GOOD MORNING?!” Genuinely considerate of making sure I heard what he had to say, he had leaned over to position himself three inches from my ear. “I… S*A*I*D*…CAN WE HAVE A GOOD MORNING?”

It is appropriate to speak when one is spoken to and in this case, I have it easy. These days One-of-my-own will meticulously formulate a fitting scrip in which I am to answer. “Now you say…. (insert mom voice), Yes, let’s have a good day,” What’s really cool is that if I don’t exactly recite the script correctly, One-of-my-own will happily correct me until I’ve got it right. Even if that is a hundred times or more throughout the day. I think I couldn’t have a better teacher.

I explained calmly to One-of-my-own that we had a very busy day. His younger sister had Cross Country practice at 9:00 AM. In the middle of my morning workout, breakfast still needed to be made, several summer school lessons were to be finished, along with making time for an important meeting at 11:00 AM in which the person that I was to meet was coming to the house. In addition, I also had six or more items on my to-do list that needed my attention, of which I hoped to check off at least a couple of them as being completed.

“SAY, can we have a good day?!… Mom, can you answer my question? Mom, just say yes. (Insert mom voice), Yes, One-of-my-own, we can have a good day. Do you want me to take a shower? Just say yes, I want you to take a shower. MAN…. ! I FEEL CALMER today. Mom…I said.. Mom, what time is Mr. A coming over? HEY MOM! CAN WE HAVE A GOOD DAY TODAY?!!!! WHAT TIME IS SO-AND-SO COMING OVER!!!!??? This is the last time I’m going to say it….MOM, C*A*N W*E H*A*V*E A GOOD DAY?!!! …… *

How can I complain about the conversation that One-of-my-own is having? After all, his words are a mantra of positivity. He’s got a smile on his face, and his voice is booming with enthusiasm. So enthusiastic is his mantra, that two hours later, the mantra is still being verbally over and over’ed, has progressively gotten louder, and I’ve been graciously asked to take a bigger part in reciting the responses that he has prepared for me. So involved is his mantra, essentially grinding to a halt any forward motion of our daily routine, I’m starting to think One-of-my-own would do well as a film director in the way he is scrutinizing each and every word coming out of my mouth to make sure I say exactly what is on the script. I close my eyes imagining him holding up a clapperboard, adding in the verbal loops of “CUT!” or “TAKE 2017… Action, ok now let’s replay that scene… C*A*N WE HAVE A GOOD DAY!

For whatever the reason, I simply didn’t want to play by the rules of today’s version of normal events that happen only in the Land of A.  I didn’t want to join in the over-and-over that One-of-my-own yelled from the other side of the bathroom door while I was taking a shower. My brain was overloaded by the constant input of non-stop dialogue, volume on ultra-loud, when he followed me around every second of my workout verbally repeating the day’s mantra. I didn’t want to loop again and again with him as I walked to my car, he running to catch up with me, leaning over to carefully roar into my ear so I would be sure to hear him. Most definitely, I didn’t want to play along when Mr. A arrived for our meeting and One-of-my-own wanted to join in our meeting by asking if we could have a good day, and than asking if we could replay the morning by going over a varied version of his conversation of earlier. “Can we have a good day? What time is Mr. A coming over? M*A*N, I FEEL calm today!”

Slumping in my chair after the meeting that didn’t really get beyond the “Can we have a good day” loop with Mr. A, I thought of all the things I still needed to do. After being coached for hours by One-of-my-own on how to reply to the conversation over and over’s and in my imagined PTASD state, I was at a loss for how I was going to complete the rest of what I had to do that day. Meanwhile as One-of-my-own leaned over the table, still engaging me in his positivity mantra, I came to the conclusion that PTASD was definitely real and promptly self-diagnosed myself with it.

I gathered everybody together and we went out, the younger siblings on their bikes, while I ran with One-of-my-own. Surely this would get rid of my newly self-diagnosis of PTASD. However, that which happens often when running, One-of-my-own’s over-and-overing continued, not making for any, by this time, much needed down time. Amazingly talented, he is able to talk the whole way through our run, never once running out of breath. His exuberance at vocalizing during the run went a little bit like this. “MAN… CAN WE HAVE A GOOD DAY? What’s for breakfast? Mom, I said, what’s for breakfast? I need to retrace my steps. What time is Mr. A coming over? Let’s refresh this day and have the rest of the day a GOOD day! How come you’re not answering me? Ok, I’ll answer for you…(interjects mom voice), Yes One-of-my-own, let’s have a good day…”

Throughout the duration of the run and into late afternoon, I refused to play the over-and-overing game. I gloomily contemplated my self-diagnosis of PTASD. By this time I was one hundred percent sure I had it, there could be no mistake. Three fourths of my day had been a swirl of never-ending loops of verbalization ringing in my ears. I couldn’t make myself attend to anymore tasks I had planned for that day. Something was definitely wrong with me.

“Mom, can I talk to you in private?” My thoughts were interrupted by the voice of my younger son and all my attention was suddenly focused on the earnestness of his expression, an ageless wisdom in his eyes. “Let me hang with my Bro,” he said. “He’ll be fine, you’ll see. We will have fun together. He’s my Bro, I love him and I will watch over him.”

Everything spiraled from slow motion to a grinding stop and time momentarily ceased in the Land of A. I considered the greatness in my younger son who had unwavering faith in the greatness in his older Bro, despite witnessing my intolerance for his need to over-and-over all day. I marveled at my younger son’s lack of judgment, the level of acceptance during the moments of his big Bro’s intense OCD verbal loops, and the unconditional love that he offered instead.

In the Land of A, where one’s career is basically 24/7, on-call for life, with little to none retirement benefits, breaks are rare. The evening breeze floated down the hillside cooling the warm summer air as it circled through the swaying tops of the pine trees in the forest all around the yard. Enough of a quiet moment in the summer night, it was the break I wish had been written as mandatory into my Land of A contract.

It fed my soul like the recent visit I had had with a friend visiting from Texas. Not a resident of the Land of A, she and I have common ground in a completely different and unrelated life journey that we both are on, that of being parents of children born to us through adoption. Listening to her story gave me validation that what I’m living is not always easy. That there are others who share similar or different life paths and that most of the times, when life gets tough, they are simply doing the best that they can, with what they’ve got in the very seconds that the tough happens.

Listening to the peaceful way the cool summer breeze made the trees move and talk in their own secret language, I realized how important it was to have that break.  Like a night that happens several days in the future when I unexpectedly find myself out on an evening run on my own. When I’m able to run in solitude and silence, alone with my thoughts, able to plug into the summer night sunset, like a battery on empty, desperately needing to be recharged.

My recently self-diagnosed PTASD melted away. Not completely but enough. The conversation with my younger son was the trigger that allowed me to mentally step back from my frustration in navigating the cyclone of One-of-my-own’s verbal loops that had swirled like a storm around me all day. The bone weariness I had been feeling had been fueled by a lack of acceptance and feeling of being uncomfortable with the latest never-ending rounds in which I was required to say or answer exactly what I was told to say or answer a thousand times a day.

It’s true that there seems to be nowhere in my house or even in the Land of A to punch a timecard, job done for the day. There are also no regulations in the Land of A that call for simply receiving a break. In such circumstances, it seems I must learn to outsmart the system. Twenty plus years, I’m still figuring out how to do that. For now, it’s the short amount of time that I sit on my front steps, my two golden retrievers flanking me on each side.

Somehow the rest of the evening will smooth out. A video game party will be arranged between One-of-my-Own and his siblings, followed by a giant family slumber party. “MOM, CAN WE HAVE A GREAT DAY? LET’S HAVE A GREAT DAY! CAN WE HAVE A GREAT DAY? WHAT ARE WE GOING TO DO TOMORROW? M*A*N I FEEL CALM TODAY! Eventually everyone will be asleep and in the rare quiet I will pick up where I had left off on my latest writing project…

Sitting on the steps, not yet aware that the night will end as it does, I make a decision. I may or may not have PTASD and yes, there are many times I am bone weary. But my younger son’s actions reminded me of what I’ve forgotten this day, to be loving and non-judgmental towards One-of-my-Own. I hear the sounds of laughter from the siblings inside the house. I’m going to make a choice. I’m going to end this day great…

Break over, I get up, open the front door and walk back inside….

-Chris….

*PTASD- (definition- Post Traumatic Autism Syndrome)

*Land of A* (A stands for Autism)

Moviestar’in Costco

One-of-my-Own usually wears sunglasses when we stop into Costco. It helps to keep the other customers from being distracted from his near movie star status. This way they can keep on with their shopping without having to stop to ask for autographs. It also helps them to not run into other shoppers with their carts when they recognize his familiar crowd-stopping, amazingly strong and clear voice and turn around to stare.

Today however, it couldn’t be helped. One-of-my-Own was recognized.  It happened as I was rounding the corner of the refrigerator section and he was flying to the baked goods section looking for hoagie bread all the while talking his way through it. “Where is the hoagie bread? Are you sure we are going to have meatball sandwiches? But what about the pizza? Why can’t we have pizza? What? I’ve eaten it for the last two nights? What did you say again? Why can’t we have pizza? Where did you say the hoagie bread was again?”

“I just LOVE when you bring him in…”

In my mission of finding the Tillamook cheese that we are out of at home, the words catch my attention. Yes, somebody had spotted him. I was sure of it when I look up to see one of the Sample Ladies smiling at me.

“Thank you. Always good to hear when somebody says such kind words,” I smile back at her and roll my cart on. It’s best that way, I don’t want to draw too much attention or more of a crowd than was already starting to form, hoping to get a glimpse of One-of-my-Own.

He catches up with me on my way to the aisle that I’m sure contains the organic sweet and sour sauce I am looking for. In his exuberance, he takes giant strides to catch up, catapulting me frozen in mid-stride as he steps on the back of my flip-flop.

My flip-flop is stuck to the cement of Costco’s floor but my foot is not. Pain shoots through my foot as the front part of my flip-flop rips into my toes. I’m caught in mid-air, silently screaming all sorts of my go-to cuss words in times of stress. I’m pretty sure I’ve become famous in my own right as more people stop to stare.

“I CAN’T FIND THE HOAGIES! Mom, are you alright? I am so sorry. Hey, let’s have pizza instead. Why can’t I have pizza again? i’ve only asked three times, can you answer me now?”

I’m able to choke out that I’m ok, it wasn’t One-of-my-Own’s fault and point him in another direction. As he flies off once more, i park my cart and put my head in my hands, waiting for my foot to stop hurting.

“Hi…”

I look up. A lady stands in front of me. Her face mirrors my own, her expression full of understanding, I get that we must be souls sisters somehow.

“I’m one of those moms,” she says to me. I don’t want them too but my eyes well up with tears and I take a deep breath and grab her hands. She goes on to explain that she knows how it is, that’s she is having one of those days. The kind where it takes one to the edge and one looks off into the abyss of the Land of A. She points over to her daughter, age 27, holding onto a cart nearby. We sit there in sisterhood, holding hands for a moment. As she walks away, I’m thankful she took the time to connect.

My foot is still hurting but I march on, collecting the rest of what’s on my to-buy list and make my way to the checker lines to pay. One-of-my-Own is still missing, looking for the hoagies, but I know he will find me. I can only hope he won’t be mobbed by his fans.

He appears as I get in line, flinging a bag of bagels into the cart, happy with his substitute choice since he can’t find any hoagie bread. “YOU WANT ME TO BUY YOU A MOCHA FREEZE? Sure mom, I will buy you a mocha freeze. Do you want me to get in line? Do you want me to get in line? What did you say? Ok, mom, I’m going to go get in line.”

He flies off, oblivious as the adoring crowd of shoppers watch him in wonder. They stare in envy at me, maybe because they can’t believe I am lucky to be a part of his life. I keep my cool, because sometimes it is hard to attract so much attention. With a smile I joke with one of my favorite checkers as he hands me the pen he knows I’m going to ask for.  I pay for my things, than head toward the food court, giving a friendly wave to those who are still looking One-of-my-Own’s way.

He finds me as I’m almost to the door. “MOM, HERE’S YOUR MOCHA FREEZE!. HERE take your change…” He shoves it at me but I ask if he could just hold onto it as I’ve got my hands full with the cart. It’s easy now. The crowd parts in a way that for some reason reminds me of the final scene out of Titanic (the movie). The one where Rose is young again and walking up the ship’s stairs to meet young Jack and all the fellow passengers are lined up watching with smiles on their faces.

For a busy Sunday at Costco, certainly a blessing as we walk out easily without having to dodge other customers and make our way back to the car. One-of-my-own happily helps me place the groceries in the back, hands me the mocha freeze before sitting down in the passengers seat. As I back out of the parking spot, I was glad to see that crowds haven’t gathered around the car. I’d been afraid that might happen. I glance over at One-of-my-Own who was still wearing the sunglasses, a smile on his face, content in the treasured moments when he is at peace in the Land of A.

His smile was enough,
I smiled as well….

-Chris…

It’s Summertime. Blue skies, warm weather, and the Pacific Northwest….

The perfect day for a road trip. It was an easy choice for me and I knew exactly where we would go. I completed my morning chores, filled water bottles, and packed my camera…

“But what about my illustrations?”  

As much as John knows I’m all for exploring and adventure and often load everyone in the car and go, he usually has to discuss, question, dialogue and process what we are going to do.

“What about “Sandman of Seaside?”

The name of our new children’s book, John has transferred his rough draft drawings to the computer and is currently working on editing and completing final copies for the story. I explained to him that if he wished, he could easily work on his illustrations in the evening when we got home.

“But what about our deadline?”

Taking his illustrations seriously, John has organized his work into a series of deadlines. His latest goal is to have his final drawings for “Sandman of Seaside” completed by the first week of August, sometime between the first and the fourth. I asked him again what he thought of working on his illustrations after our road trip?

“I’ve got an idea.”

John gathered several pieces of drawing paper and a pencil, explaining that he would work on illustrations for a third book I am currently writing instead of “Sandman of Seaside.” He suggested stopping at Starbucks in Sandpoint, the Idaho town he knows that I was planning on road tripping to. As it is often hard for John to move past what he is planning on doing when there is a sudden change in schedule, I was pleased that he was strategizing on how to do so.

“I’ll work on “Chesty and His Boy.”

Surprisingly that is exactly what he did. During our road trip, he talked about his ideas for the first page. It was such a nice day, I asked him to consider drawing at the beach park so his younger brothers could swim.. He didn’t like it but agreed to compromise. We would stop first at Starbucks than find a place to write and illustrate down by the lake.

“Do you like what I’ve drawn?”

Though it took two trips back to the car to retrieve what he had forgotten, first his paper and pencil, next the wooden board he had brought with him, a smooth surface to place his paper and draw on, John sat down and began to draw. A breeze cooled the afternoon, relief from the hot summer day. The lake with the mountains all around and the sky above were many layers of sun shined shades of blue. For a short time, we sat side by side, illustrating and writing in the quiet calm that nature sometimes brings. I watched him for the seconds that he was relaxed enough to be free from the OCD tics that make it so hard for him to formulate his thoughts and speak. A beautiful thing to see. I smiled and said….

“I love it…”

-Chris….

My daughter Dani likes to put books on hold at our neighborhood library. Lot’s of them…. Because of this I often receive email notices that the books have arrived and are waiting for her to pick up and check out.

Today she had a special one to show off to her brother John ….

“WAIT! Do they REALLY have Bean and Pocket at the LIBRARY?”

John yelled as he walked through the glass doors leading into the main room of the library. Dani was waiting on the other side holding a copy of Bean and Pocket that she had reserved as a surprise for John.

“I can’t BELIEVE Bean and Pocket is at the library!”

Several librarians immediately looked our way at John’s excited exclamation with raised eyebrows but kindly refrained from asking us to use our library voices. I however thought it best to remind John that with all due respect, we should speak quietly.

“I’m REALLY excited… IT’S here…!”

John whispered loudly. Several people looked up from books they were reading to find out what the commotion was about. The expressions on the faces of the librarians watching us turned to curiosity when I whipped out my camera to take a couple quick photos.

“Bean and Pocket is AT the LIBRARY!”

John’s smile lit up his face as he spoke. He had forgotten to whisper and the raised volume of his voice drew more curious stares. Dani proceeded to check out her stack of books, Bean and Pocket placed carefully on the top, her way of letting John know she loved him.

“IT’S a LIBRARY book!”

John said in awe. It was closing time at the library. One of the librarians locked the door behind us as we left the building. We stopped so I could take a couple more photos than off we walked to the car. John sat in the front seat, his blue eyes twinkling, a smile still on his face. It was easy to see that he was greatly pleased that our book had made it’s way to the library. I pulled out of the parking lot, the little yellow book sitting in John’s lap…

“BEAN AND POCKET was at the library…”

-Chris

*Bean and Pocket

sold on Amazon.com 

  CHECK US OUT ON AMAZON!

 

https://www.amazon.com/Bean-Pocket-Story-Hummingbird-Elixir/dp/0692870016/ref=sr_1_1?ie=UTF8&qid=1493522407&sr=8-1&keywords=Bean+and+Pocket

What to do on a gray and lonely day? A young girl’s imagination collides with a hummingbird’s magic and an unexpected offer to fly away on an adventure unlike any other. Where rain turns into sunlight, and the colors of the rainbow are reflected in the wings of tiny birds, Bean finds joy in a world filled with new friends and hope in a a gift that with a promise, is left behind.

Ten months ago I had an idea and a question that began with, “What if…..?”

What if I put aside the novel I had been writing? Change direction, try something different? A children’s book perhaps, with illustrations that would need to be drawn? 

I had my twenty-two year old son John on my mind. Diagnosed with Autism at the age of three, would John accept an invite to be involved in such a project? Could this be an opportunity for him to feel satisfaction in accomplishment, to have something to be proud of, a sense of purpose? What if he said yes?

I presented my children’s story idea to John and asked him what he thought about illustrating it. From John’s years of high school art and his continued drawings at home, I believed in the possibility that he could do it. The question was, would he want to? 

It makes me smile now to remember his enthusiasm as he readily agreed that he would like to be involved. From that moment on, he viewed himself as an illustrator, proud for what he believed he could do. He never wavered from his dedication to completing our project. His sense of purpose has grown in the months he has been working on the book and he has been very excited for the day that it would finally be published.

Today, I had the honor of letting my son John know that his wish for the story I had written, the one that he believed in himself to illustrate, has come true.

Very thankful to be in this moment and may I never forget to believe in the “What if’s…”

Chris